I do not understand why everyone with organizations helping people with CRPS/RSD feel that it is a competition. Why can we not work together to help one another? Why attack others who are trying to help those with CRPS/RSD.
I know that the CRPS community is a representative of society where unfortunately there are people who are nasty and unscrupulis. You would think that because they know how difficult it is to live with this monster, that they would have more compassion for one another.
I could sit here writing and name names of those who are making it their mission to try to stop CRPS Partners In Pain, Inc and our board from helping others. I will not stoop to their tactics. I will not give them the satisfaction of affecting the good work that we are doing for others.
Everyone associated with CRPS Partners In Pain, Inc volunteers their time. No one take a salary. We all either have CRPS or have a family member with CRPS. Every donation goes directly to help those who otherwise would not be able to get treatment. Additionally, we try to provide information on CRPS/RSD. RSDSA.org has great research articles and information on learning more about CRPS/RSD. I support their efforts 100%. The board of CRPS felt that there was no need to duplicate the fine work that RSDSA.org is doing with research funds and education. They also have a small fund to help people with RSD catch up with bills and assist with treatment. We felt that we could be more effective just trying to get those with CRPS who otherwise would not be able to afford treatment some financial assistance.
There are several CRPS/RSD non-profits. We each need to work together toward the betterment of the CRPS/RSD community. I freely vow to help any of the other organizations that represent chronic pain patients or specifically RSD. Some of these organizations are:
US Pain Foundation
As members of the chronic pain community, we need to work together.