Thursday, January 31, 2013

Non Profit

For several years now, I have heard the stories of those with CRPS/RSD who can not afford treatment either because their insurance won't cover it, their workman's compensation won't cover it or they had no health insurance.  I am fortunate that my husband has a good job with good insurance.  I wondered what could be done to help these people.  I have helped people fight their insurance.  I did that as part of my job as a nurse so I am fairly good at that.  There are only a hand full of doctors who are considered CRPS/RSD experts so even if I was able to successfully fight the insurance; they then had to find a way to save up for travel and lodging.  A few of us thought that perhaps we could start a non profit group with the sole objective of helping those with CRPS/RSD pay for treatment.

In December 2012, things came together and we were able to launch CRPS Partners In Pain. (

We are now in the process of trying to raise money in order to meet our objective.  I have written a few grants, people are making items to sell on Ebay but what we need is a grant from some one or an agency that wants to help people who are in excruciating pain 24/7.  So far we haven't found that person or group.

If you know of someone who would like to make a tax deductible donation, please go to our site.  There is a portal there that allows you to make a donation from your computer.


1 comment:

  1. My wife is suffering from crps. We are located in Alabama. I am trying to find more information on where to go to have Ketamine procedures done for her. Money is tight but she deserves to be in remission. I am trying to find out where to go to have this procedure done. Where did you go? And how much did it cost?