For several years now, I have heard the stories of those with CRPS/RSD who can not afford treatment either because their insurance won't cover it, their workman's compensation won't cover it or they had no health insurance. I am fortunate that my husband has a good job with good insurance. I wondered what could be done to help these people. I have helped people fight their insurance. I did that as part of my job as a nurse so I am fairly good at that. There are only a hand full of doctors who are considered CRPS/RSD experts so even if I was able to successfully fight the insurance; they then had to find a way to save up for travel and lodging. A few of us thought that perhaps we could start a non profit group with the sole objective of helping those with CRPS/RSD pay for treatment.
In December 2012, things came together and we were able to launch CRPS Partners In Pain. (www.crpspartnersinpain.com)
We are now in the process of trying to raise money in order to meet our objective. I have written a few grants, people are making items to sell on Ebay but what we need is a grant from some one or an agency that wants to help people who are in excruciating pain 24/7. So far we haven't found that person or group.
If you know of someone who would like to make a tax deductible donation, please go to our site. There is a portal there that allows you to make a donation from your computer.